August 8th: Severe ME Awareness and Remembrance Day.
This is my small contribution to Severe ME Awareness and Remembrance Day: August 8th 2014.
Imagine a world where four walls are your only view,
Not just for the day but for years sometimes decades.
Imagine some days you felt so ill you couldn’t raise your head from your pillow.
And you can barely speak or see.
But doctors won’t believe you and worse still, if they do, they have nothing…absolutely nothing to help you.
How would you cope and what would you do?
Would you lay there and give up?
It would be understandable if you did.
If you curled into a ball and slowly let go of life.
Or would you fight it?
Would you beg for help, for someone to please help ease the pain and the suffering.
Imagine how scary and how strange it would be if no-one was listening.
That safety net we all believe in…doctors and nurses and caring hands in hospital…closed their ears to your cries.
They block out the image of you suffering and choose to not believe you are real and that what is making you sick is imagined.
They ignore your pain.
Also, imagine being that person’s loved one…lost and confused and in desperate need of help.
How would your husband or wife or your children or parents cope if you were to suddenly drop out of living and life, not just for a day or two, but for months and years?
How would they manage? And how would they feel?
Wouldn’t they feel angry and isolated having to deal with their sick loved one, having to run the family home and work?
What if no-one cared enough or had time to reach out and say “let me help you!”
What if no-one understood how bad it really gets behind those four walls.
Imagine this happening to someone you love.
What would you do if this were you or your family or friends?
This life with Severe ME…It completely halts normal lives and it robs families of their loved ones.
It ends relationships and leaves people, those who are sick or those who are caring, in such isolation and fear.
If you can imagine how this would feel or you are already feeling and living this non life then please do one thing today to help raise awareness for Severe ME.
You can learn more here
Severe ME Awareness and Remembrance Day: