Carole…

…speaking through art, poetry and humour…oh and politics too!

Archive for January 2015

18 Mind-Blowing Glass Marbles!

Glassation

18. 1.211″ by James Daschbach. Glass marble extraordinaire James Daschbach has been working with glass for over 15 years, and is widely recognized for his out-of-this-world, galaxy-like borosilicate marbles.  He currently resides in Washington.

Source: James Daschbach. Source: James Daschbach. All photos © their respective owners with permission granted for this blog post unless otherwise noted.

17. Truce Colors by Andrew Brown Studios. Carved using the battuto technique, this gorgeous marble is the ultimate play between color and texture.  Andrew Brown graduated with a Bachelor of Fine Arts in illustration from the Savannah College of Art Design in 1998, and then relocated to Albuquerque, NM, where he began his rewarding and innovative career making glass art.

Source: Andrew Brown Studios. Source: Andrew Brown Studios.

Source: Andrew Brown Studios. Source: Andrew Brown Studios.

16. Opal Basket by Raj Kommineni.  Sandblasted, faceted, and featuring a perfectly-positioned opal, this brilliant artwork was created by Raj Kommineni.  Raj was born and raised in Massachusetts, and…

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Written by carolecarrick

January 25, 2015 at 6:21 am

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Giving Science a Bad Name: unethical psychiatric research into ME

Utting-Wolff Spouts

‘It is the duty of physicians who participate in medical research to protect the life, health, dignity, integrity, right to self-determination(…) of research subjects'[1]

In the flurry of activities sparked by another media onslaught on the chronically ill on 14th January (to be followed by a similarly, probably more loosely, orchestrated attack in Sweden on 15th January), I got caught up in collaborating with dozens of others who had written, and keep writing, brilliant, witty, intelligent, emotional, heartrending responses to journalists and science editors. 14th January 2015 was an exhausting day and on a more serious note, it was an unnecessarily painful day, too. While I was comforted by the responses from other sufferers in the UK, Sweden and elsewhere, I couldn’t help asking myself what sort of world we would live in if a serious and debilitating disease such as myalgic encephalomyelitis (ME)[2] were taken seriously…

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Written by carolecarrick

January 21, 2015 at 7:24 pm

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The Lack of Critical Thinking in Journalism.

Written by carolecarrick

January 19, 2015 at 1:43 pm

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A National PR Campaign for Myalgic Encephalomyelitis (M.E.) has formed, and we mean business.

Written by carolecarrick

January 19, 2015 at 3:49 am

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Jill Stratton in the Guardian

Written by carolecarrick

January 16, 2015 at 4:54 pm

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Language and Metaphors

Written by carolecarrick

January 14, 2015 at 11:13 pm

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What doctors used to believe but would be laughed at if they still did.

“What doctors used to believe but would be laughed at if they still did.”

I’m feeling very fragile today and into week four of my flu on top of ME…a very bad place to be and feeling weaker by the day considering how much resting I’m forced to do… it’s a bit worrying.

But because of the articles in today’s media about false illness beliefs and all the usual rubbish that the psychiatrists keep spewing out about ME, a thought occurred to me about things doctors used to believe in, that have been disproved, with the hope that soon…please very soon, it shall happen for this illness too.

This isn’t going to be any sort of intellectual article (have I ever done one of those lol) or even very detailed. Instead I’ll point you to someone else’s well written explanation or you can just take it as read and believe me that Doctors really DO NOT know everything…I don’t think they ever will and that they get so much badly wrong in all areas of medicine but none so more than in ME.

Just to make a comparison I want to mention five things Doctors believed in but would be laughed at if they still did.

Let’s also remember these were EXPERTS in their day.

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Multiple Sclerosis was once believed to be female hysteria. Until the invention of the MRI scanner patients were forcibly detained in mental institutions, made to have hysterectomies and ridiculed by society…imagine how society would look upon this happening today with a very severe and life threatening illness. Oh it is you say, yes you’re right…it’s happening to virtually every ME patient in one form or another and like with MS until the science catches up then we have to fight daily for recognition. http://www.richardwebster.net/freudandcharcot.html

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Doctors once believed that female hysteria (which turned out to be many various ailments) could be cured by initiating orgasms…indeed no better way could we find to call Doctors ‘Wankers’  http://www.nytimes.com/books/first/m/maines-technology.html

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This was a while back but hygeine hadn’t been considered to very important in medicine (some would say it’s descending back that way again through ignorance) and surgeons would routinely operate on multiple patients causing cross infection and death along the way before some bright spark realised it was a bit stupid! http://infectiousdiseases.about.com/od/prevention/a/history_hygiene.htm

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Shellshock/cowardice History shows us that all those hundreds if not thousands of men who lost their lives/ shot against a wall would be treated with care and compassion now with what is now called Post Traumatic Stress Disorder. http://www.bbc.co.uk/history/british/britain_wwone/shot_at_dawn_01.shtml

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Doctors smoked cigarettes and some still do. I’ve no need to link to any evidence here that smoking is very bad for one’s health and therefore the Doctors that partake in it are in my opinion idiots too!

Doctors are not Gods!

Doctors cannot and do not know everything!

Even experts in whatever field are continually learning and being proved wrong.

Of course medicine has come a long way in the past two centuries, but sadly so many Doctors seems to now fall back on their laurels of having qualified umpteen years ago and fail to develop along with the medicine.

That is until it is it’s completely irrefutable and with biomedical research in to ME that’s when we are going to be able to say “Fuck You…I told you were are ill!”…treatment will follow soon after.

Written by carolecarrick

January 14, 2015 at 4:42 pm

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ill founded and unreliable research in today’s papers.

Today there has been a slurry of articles in the main stream media and they’re all being shared, read and thankfully destroyed across social media. One of my friends Hazel Howard wrote this response to the articles.

There is a link to another blog at the bottom of this post with all links to the articles and some other responses too.

Thank you Hazel for saying and expressing what so many of can’t or are too sick to be able to today.

Another ill-founded unreliable research article on the benefits of exercise in Me/CFS

It is upsetting when these scientists crank up the same tired old drum, and bang out a variation of the same old sorry tune. It’s recognise and picked up by the media and all of a sudden everyone is singing along…… And once again it’s in the popular music charts, subliminally churned out to the masses……….Except for those of us who are chronically sick……this dull repetitive drone…… is pure offensive noise pollution and serves to make us sicker, it hurts. (Bad science hurts us)

You can engineer most research to FIND/CONCLUDE most things as long you as you are seen to be sticking stringently to the rules of academia, (Rules compiled by the academical, hierarchical institution….. revered by them, sustained by them and controlled by them) you could pretty much conclude the moon was blue.

Confirmation bias (a type of cognitive bias; ironically) is highlighted and mitigated for…… or is it??? (If you always do what you’ve always done? you’ll always get what you’ve always got; springs to mind here)

Tragically this misguided research glides through because it seemingly follows rigours rules….. but also because it is a continuum from previous (pace) ‘ME/CFS bashing’ research….. It’s accepted by journals, it gets peer reviewed as some kind of ‘rite of passage.’ Yet we hear Dr Montoya and other imminent ME/CFS doctors and researchers in the field highlight how difficult it is to get any ME/CFS research into a journal. Getting funding for any such ME/CFS research is even more elusive. And because of this tragically for our patient community many researchers and medical professionals feel unable to bring fresh and honest evidence for fear of destroying their own career.

Cognitive behavioural therapy (CBT) “as prescribed-is what it says on the tin, it is prescriptive!! It is just another person’s perspective/view. A person with no ‘lived in’ experience) on what they think is best for our individual illness. Its aim is to change our beliefs (to theirs!!) Cognitive Behavioural Therapy does NOT foster autonomy. Well….it does if only you’ll change your false illness beliefs and stop avoiding the gardening, going to the gym and that holiday of a lifetime you’re just shirking.

I (with a psychology and research background) am not in the least bit frightened of “Movement” on the contrary I yearn-crave to be up-and-about. Of course I test the boundaries like most of my M.E. companions ……. and we learn from and share our mistakes. Experimental good lived-in research!!!!! This is what Cognitive Behaviourist call, “Weighing up the pros and cons,” we consider the advantages and disadvantages and we learn from each other. We share techniques, support and encourage each other and feed-back. Most importantly this is NOT STATIC; we are constantly updating and trying new ideas. The best and truest form of ‘cognitive fluency.’

The ME/CFS patient group is a diverse, intelligent and highly motivated community. We have at our disposal access to more current (and historical) research than most scientific researchers would include in any study. Collectively we are privy to far larger, more holistic, universally rounded approaches i.e. Supplements, protocols, psychological, physiological, diet, complimentary, massage, osteopathy, chiropractic, cranial, spiritual, (the list is endless)

As a patient group, we do not set out to prove or disprove hypotheses for professional gain. Our aim is to get well!! Thus we have our lives and indeed our quality of lives invested in it.

Because we are not confined to a strict set of rules and we encompass so many individuals with differing opinions, abilities and backgrounds we have the flexibility to highlight biases. Therefore, on the strength of our own conclusion we can make autonomous decisions and judgements that fit with our symptoms and limitation (within our chronic illnesses) to the very best of our ability. And we can update and change accordingly, whilst………..

………….the rest of the medical world and the Doctors and real scientists who are truly working for us, are allowed to catch up with real science and bio-medical research, which one day will help us get the treatment (and humanity) that we truly deserve.

May I also point you towards this excellent blog post which has the links to all the articles that this is referring to…
https://guj30.wordpress.com/2015/01/14/the-medias-inaccurate-and-biased-reporting-of-me/

Written by carolecarrick

January 14, 2015 at 3:19 pm

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