Archive for March 2015
Mouse Crap
Everybody out there with chronic fatigue syndrome (CFS) – WAKE UP! There are some creatures in the room, and they aren’t mice. Well, these creatures are distant cousins of critters that live in mice. These cousins have moved on up to live in humans
These creatures are called retroviruses. So far there are only three retroviruses known to cause disease in humans according to the United States government. HTLV-1 is associated with adult T-cell leukemia. GTLV-2 is associated with hairy cell leukemia. Human immunodeficiency virus (HIV) is associated with acquired immunodeficiency syndrome (AIDS). http://www.ncbi.nim.nih.gov/books/NBK7934
But there might be another retro creature causing human disease. Dr. Judy Mikovits studied blood samples from CFS patients and controls looking for a new retrovirus. She found 67% of CFS patients were positive and 3.7% of the healthy controls were positive. These results were published in “Science” on May 23, 2009. Later…
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I stand quietly
Autism awareness.
I stand quietly while you do somersaults on the bed as you aren’t being naughty, you are just trying to get your out of sync body under control.
I stand quietly by the toilet door every time you need to go, and come with you around the house, and sometimes even just across the room, because I know you can feel truly frightened when you are not near me.
I stand quietly at the supermarket checkout while everyone stares at you barking like a dog and blowing raspberries on my arms to cope with the buzzing lights.
I stand quietly while you tell the baffled shop owner that you are looking for shoes that feel hard like splintered wood because your skin can’t bear soft things.
I stand quietly when the attendant gives us scornful looks when I ask for the key to the disabled toilet because the hand dryer…
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Animated clouds
In the month of February, two new films were discovered whilst scavenging for pumpkins in the mind of the Bewildered Cauliflower.
The first film formed after an intense week in January making ten short animations in ten days. I made four of these films to relate on some level, then afterwards, began to explore possibilities and polish them, turning into this!
The second film is a poetic experiment relating to the cloud story, currently in progress. I put together some already created images to some of my notes, read aloud and beautifully put to guitar by my friend, Scott McHenry, who lives here: http://scottmchenry.co.uk/
Here is the film. I think it is a boost to inspire further ideas for this tale, as well as an experimentation into the animated world.
Beneath a full moon tonight, I sit awake and listen to the voices of tomorrow, beckoning me to join their…
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Clouds
I’m blown away by the beauty of this young man’s art. There are also some of his videos on Vimeo here https://vimeo.com/121291772.
The Lancet’s representation on Social Media on 4th March 2015
Yesterday, Pam Das, a senior executive editor on The Lancet’s editorial board accused ME sufferers of being bullies on Twitter. As Ms Pam made such an accusation in the public sphere I have informed The Lancet of posting my letter of complaint to my blog where it can be publicly discussed. Needless to say I am appalled by Ms Das’ behaviour which has caused unnecessary upset. As I have made clear in previous posts I am of the opinion that we need more knowledgeable and well-informed people who engage in critical thinking and compassionate practices. Hateful remarks on social media are not the way forward. I hope The Lancet will dignifiy me with a response in which they clarify their position.
Only Now is Important
Thoughts from a very severe M.E. Sufferer. My heart goes out to her and also her devoted husband too.
My moments are mostly empty, numb, paralysed, noise assaulted, pain filled, agonised; waiting for movement, waiting for thought, waiting for feeling, waiting for something to happen that does not harm or disturb me, waiting for quiet, waiting for pain to subside, even though it will not, does not, can not.
Into this empty void of life comes awareness, just about its only gift. Awareness of being, not doing, awareness of time, awareness of what is important, awareness of life, of breath, of being, of God Himself, being here with me.
Time stopped being linear a long long time ago for me. The future cannot be planned, the past cannot be well remembered, only the present exists. Nothing is predictable, nothing is plan-able, nothing is reliable therefore only being here, now, is important. Only the present is. That is what my life has become. Time has slowed. It seems to flow…
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Short Blogs for the Distracted.........
So not wanting to rehash all that has been in the press… I’m left yet again with a feeling of impending doom….. I’m yet to fully understand the true implications of this bit of current new research… but it’s not doing much for the most severe suffer….. nobody is doing much for the most severe cases…. I wonder how many will just give up the fight… the continual daily battle… it breaks my heart when I hear we have lost another fellow warrior….. that they could no longer face this demoralizing existence…. It’s a daily miracle that we manage to survive….. that those of us with the energy to fight on do so for all those who can’t….. there are wonderful kind beautiful people who I’ve the privilege to call my friends ….. who are supportive …. who use valuable energy to help us understand the complexity of…
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