…speaking through art, poetry and humour…oh and politics too!

Call for Female Artists: visual artists, writers, poets, performers and musicians

Written by carolecarrick

March 5, 2015 at 9:44 am

Posted in Uncategorized

Only Now is Important

Thoughts from a very severe M.E. Sufferer. My heart goes out to her and also her devoted husband too.

Holy Way Journal


My moments are mostly empty, numb, paralysed, noise assaulted, pain filled, agonised; waiting for movement, waiting for thought, waiting for feeling, waiting for something to happen that does not harm or disturb me, waiting for quiet, waiting for pain to subside, even though it will not, does not, can not.

Into this empty void of life comes awareness, just about its only gift. Awareness of being, not doing, awareness of time, awareness of what is important, awareness of life, of breath, of being, of God Himself, being here with me.

Time stopped being linear a long long time ago for me. The future cannot be planned, the past cannot be well remembered, only the present exists. Nothing is predictable, nothing is plan-able, nothing is reliable therefore only being here, now, is important. Only the present is. That is what my life has become. Time has slowed. It seems to flow…

View original post 155 more words

Written by carolecarrick

March 4, 2015 at 8:13 am

Posted in Uncategorized

Breaking: Google gives new meaning to “Orwellian”

Written by carolecarrick

March 2, 2015 at 5:50 am

Posted in Uncategorized

Short Blogs for the Distracted.........

Feeling broken.... Feeling broken….

So not wanting to rehash all that has been in the press… I’m left yet again with a feeling of impending doom….. I’m yet to fully understand the true implications of this bit of current new research… but it’s not doing much for the most severe suffer….. nobody is doing much for the most severe cases…. I wonder how many will just give up the fight… the continual daily battle… it breaks my heart when I hear we have lost another fellow warrior….. that they could no longer face this demoralizing existence…. It’s a daily miracle that we manage to survive….. that those of us with the energy to fight on do so for all those who can’t….. there are wonderful kind beautiful people who I’ve the privilege to call my friends ….. who are supportive …. who use valuable energy to help us understand the complexity of…

View original post 71 more words

Written by carolecarrick

March 1, 2015 at 7:55 am

Posted in Uncategorized

Quo vadis, Science Media Centre?

Thank you for such a detailed and also witty response to the SMC drivel. Very much appreciated. Re logged.x

Utting-Wolff Spouts

Yesterday saw some positive media headlines for the ME community. The research from Columbia University by Hornig et al, concerning the level of cytokine activation as a potential biomarker for ME, looks promising[1]. ME research indicating a biological pathology is often dismissed due to the small number of participants but this was a study comprising 298 ME patients and 348 controls, which will hopefully give it more weight in scientific circles[1]. Unfortunately, as is usual with UK media coverage, reporting was not unequivocally positive; the difference in tone between the UK and US media coverage was marked. In the former, most of the usual suspects promoting the psychogenic paradigm were quoted, aided by the Science Media Centre (SMC). There is little hope of this group of psychiatrists going quietly into the night and we will probably experience a backlash from that quarter; they have much to lose if and when…

View original post 914 more words

Written by carolecarrick

February 28, 2015 at 11:58 pm

Posted in Uncategorized

Hate speech is not knowledge

Excellent explanation of what’s wrong with some academics, journalists and sadly doctors who like to throw their two penneth in about M.E. A worthwhile read.


Hate speech is not knowledge.

Written by carolecarrick

February 26, 2015 at 11:43 am

Posted in Uncategorized

words can’t express it…..

Written by carolecarrick

February 13, 2015 at 8:46 pm

Posted in Uncategorized

its not over till the fat lady sings

Short Blogs for the Distracted.........


The silly IOM ( institute of morons ) renamed of our illness S.E.I.D. my memory is so shot from having Myalgic Encephalomyelitis I can’t remember what the so called new name is…. it doesn’t have a WHO code ..or a very good definition… but that doesn’t matter does it…. I do know how these government types love the acronym .. so goody an easy one to remember it spells D.I.E.S. backwards…. just how fortunate are we….
I’m sure there are so many of us who are just enthralled with the shiny new name…… Can’t wait for the none testable flood of new victims who will be pumped full of the new wonder drugs….. the drugs that have not helped or cured us in the last 30 years……
You may detect from my sarcasm that I’m a little testy about the whole thing…. a very wise assumption….. but they haven’t won…

View original post 1 more word

Written by carolecarrick

February 12, 2015 at 10:48 pm

Posted in Uncategorized

A proposal

Anyone out there able to join in with this?

Utting-Wolff Spouts

This post is not what you might have expected; it even has a working title:

Growing up with ME: surviving childhood and becoming an adult while chronically ill

We would like to invite you to participate in an anthology on children with ME. If you are an adult who became ill as a child or teenager, we would like to hear from you.

Background: children and teenagers suffering from myalgic encephalomyelitis are especially vulnerable; having become ill as children ourselves, their welfare is of particular concern to us. The experience of becoming chronically ill when young is quite different to becoming ill as an adult. Children often endure illness unheard and ignored, with none of the life experience or authority of an adult to help them cope with their significantly altered condition. They have the added problems of dealing with incompetent medics, school psychologists, physiotherapists, uncooperative school staff and…

View original post 846 more words

Written by carolecarrick

February 5, 2015 at 7:21 am

Posted in Uncategorized

Misrepresentations of Chronic Illness and Disability

This is very interesting.

Utting-Wolff Spouts

There has been some discussion among sufferers of chronic illness and disability as to the usefulness of theoretical or conceptual models (social, biomedical, etc) to explain the complexity of disability and chronic illness. A concern raised in the past few days, following a blog post that addressed the social model [1], was that no theoretical model could fairly represent the circumstances in which chronically ill people find themselves. Two points regarding this:

1) When we deviate from norms we will invariably be subjected to all manner of analyses that explain through some lens why we no longer form part of the norm. People have always been interested in learning more about difference, and unfortunately that learning often involves (initial) stages of turning those who are ‘different’ into the ‘Other’. It is called ‘othering’ and the more extreme forms of othering range from character assassination and ridiculing, to hate crime. All…

View original post 1,356 more words

Written by carolecarrick

February 1, 2015 at 4:47 am

Posted in Uncategorized

52 Stitched Stories

Creating a stitched postcard once a week......

Mike Deakin Art

Art Journaling, Mixed Media & Papercrafts

Wilsher 's Blog

A fine site

Paula Carnes

Author & Health Advocate

Bewildered Cauliflower

Painting, illustration, animation by Mark Boston

Art Saves Lives International

Create Change - Engage, Educate and Express Our World

Scope's Blog

Scope exists to make this country a place where disabled people have the same opportunities as everyone else. Until then, we'll be here.

Utting-Wolff Spouts

Encompassing the natural and social sciences, politics and social justice issues

The Other Side Of The Stretcher

Nurse Turned Patient Living Life On The Other Side Of The Stretcher since 1995!

Ordinary Miracles

This blog is my story about a life forever changed by chronic illness. I hope you'll laugh and cry with me as I try to make sense of it all. Oh, and nothing I say should ever be construed as offering medical or legal advice.

The poor side of life

Exposing the unfair treatment of jobseekers, the horrors of Universal Credit, unfair sanctions and heinous treatment of claimants at Ashton under Lyne Jobcentre.

Thoughts About M.E.

Myalgic Encephalomyelitis (M.E.) Advocacy

Tim mattock's Blog

Trying to turn the world the right way round!

Wee Ginger Dug

Biting the hand of Project Fear

<span>%d</span> bloggers like this: