Clouds
I’m blown away by the beauty of this young man’s art. There are also some of his videos on Vimeo here https://vimeo.com/121291772.
The Lancet’s representation on Social Media on 4th March 2015
Yesterday, Pam Das, a senior executive editor on The Lancet’s editorial board accused ME sufferers of being bullies on Twitter. As Ms Pam made such an accusation in the public sphere I have informed The Lancet of posting my letter of complaint to my blog where it can be publicly discussed. Needless to say I am appalled by Ms Das’ behaviour which has caused unnecessary upset. As I have made clear in previous posts I am of the opinion that we need more knowledgeable and well-informed people who engage in critical thinking and compassionate practices. Hateful remarks on social media are not the way forward. I hope The Lancet will dignifiy me with a response in which they clarify their position.
Only Now is Important
Thoughts from a very severe M.E. Sufferer. My heart goes out to her and also her devoted husband too.
My moments are mostly empty, numb, paralysed, noise assaulted, pain filled, agonised; waiting for movement, waiting for thought, waiting for feeling, waiting for something to happen that does not harm or disturb me, waiting for quiet, waiting for pain to subside, even though it will not, does not, can not.
Into this empty void of life comes awareness, just about its only gift. Awareness of being, not doing, awareness of time, awareness of what is important, awareness of life, of breath, of being, of God Himself, being here with me.
Time stopped being linear a long long time ago for me. The future cannot be planned, the past cannot be well remembered, only the present exists. Nothing is predictable, nothing is plan-able, nothing is reliable therefore only being here, now, is important. Only the present is. That is what my life has become. Time has slowed. It seems to flow…
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Breaking: Google gives new meaning to “Orwellian”
Breaking: Google gives new meaning to “Orwellian”
Becomes Ministry of Truth
by Jon Rappoport
March 1, 2015
“…if all records told the same tale — then the lie passed into history and became truth.” (1984, George Orwell)
The New Scientist has the stunning story (2/28/15, “Google wants to rank websites based on facts not links,” by Hal Hodson):
“THE internet is stuffed with garbage. Anti-vaccination websites make the front page of Google, and fact-free ‘news’ stories spread like wildfire. Google has devised a fix – rank websites according to their truthfulness.”
Great idea, right?
Sure it is.
The author of the article lets the cat out of the bag right away with his comment about “anti-vaccination” websites.
These sites will obviously be shoved into obscurity by Google because they’re “garbage”…whereas “truthful” pro-vaccine sites will dominate top ranked pages on the search engine.
This is wonderful if you believe what…
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Feeling broken….
So not wanting to rehash all that has been in the press… I’m left yet again with a feeling of impending doom….. I’m yet to fully understand the true implications of this bit of current new research… but it’s not doing much for the most severe suffer….. nobody is doing much for the most severe cases…. I wonder how many will just give up the fight… the continual daily battle… it breaks my heart when I hear we have lost another fellow warrior….. that they could no longer face this demoralizing existence…. It’s a daily miracle that we manage to survive….. that those of us with the energy to fight on do so for all those who can’t….. there are wonderful kind beautiful people who I’ve the privilege to call my friends ….. who are supportive …. who use valuable energy to help us understand the complexity of…
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Quo vadis, Science Media Centre?
Thank you for such a detailed and also witty response to the SMC drivel. Very much appreciated. Re logged.x
Yesterday saw some positive media headlines for the ME community. The research from Columbia University by Hornig et al, concerning the level of cytokine activation as a potential biomarker for ME, looks promising[1]. ME research indicating a biological pathology is often dismissed due to the small number of participants but this was a study comprising 298 ME patients and 348 controls, which will hopefully give it more weight in scientific circles[1]. Unfortunately, as is usual with UK media coverage, reporting was not unequivocally positive; the difference in tone between the UK and US media coverage was marked. In the former, most of the usual suspects promoting the psychogenic paradigm were quoted, aided by the Science Media Centre (SMC). There is little hope of this group of psychiatrists going quietly into the night and we will probably experience a backlash from that quarter; they have much to lose if and when…
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